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Dr Nina Hallowell

Reader in Social Science and Public Health

Public Health Sciences section
Division of Community Health Sciences
The University of Edinburgh
Medical School, Teviot Place
Edinburgh
EH8 9AG
Tel: 0131 650 3230
Fax: (0131) 650 3090
Nina.Hallowell@ed.ac.uk

ROLE

Co Deputy Director of Public Health Research MSc Programme

Teaching Responsibilities

Undergraduate

• Medical Ethics

Postgraduate

• Course organiser: Introduction to Research Ethics , MSc dissertations

Research Interests

The main focus of my research is the social and ethical implications of the new genetic technologies, other research interests include: the sociology of risk, the sociology of the body and research ethics. Main themes:

• Cancer genetics: ethical and social issues
• The relationship between bioethics and empirical research
• The use of human sample collections (particularly DNA) as a research resource
• Lay understanding of health risks and risk management
• Lay-Professional interaction

Current Research Involvement

• 2008-09 - £18,500 - Leverhulme Study Abroad Fellowship (N.Hallowell)
• 2008-09 £68,000 - '4T: qualitative sub study' Diabetes UK (J.Lawton, Farmer A, N.Hallowell)
• 2007-08 AUS$86,000 'Provision of cancer genetics services within Australia: Practitioners' perceptions of ethical issues, training and service needs' NSW Cancer Council (B.Meiser, K.Barlow- Stuart, G.Suthers, N.Hallowell, E.Lobb)
• 2007-10 £57,000 - 'An ethnographic investigation of the Prevention of Diabetes and Obesity in South Asians (PODOSA) trial '(PhD Studentship) CSO (J.Lawton, N.Hallowell, H.Bradby)

OTHER RESPONSIBILITIES/ACTIVITIES

External Examiner Taught Courses

• May 2006- 2010 - MSc. Genetic Counselling, University of Manchester

Member of Project Advisory Committees/Steering Groups

• I Lipkus, Duke University, N. Carolina USA "Assessing Risk Communication Educational Practices in Genetic Counseling Programs." 2008-10
• J. Evans et al., University of Oxford. DIPex Project - Leukaemia module. Cancer Research UK 2008-2010
• M McAllister MRC Clinical Fellowship Advisory Committee, The University of Manchester 2007-2010

Editorial Board Membership

• Sociology of Health & Illness (2006-2009)
• Health, Risk and Society (2005- )

External Committees

• Scientific Programme Committee EMPAG (European Meeting for Psychosocial Aspects of Genetics) 2008-2012

SELECTED GRANTS

• The 4−T study: a qualitative investigation of patients’ and health professionals’ experiences and views (Diabetes UK, 2009-2010) Lawton, Holman, Farmer, Hallowell
• An ethnographic investigation of the Prevention of Diabetes and Obesity in South Asians-(PODOSA) trial. (Chief Scientist Office, 2007-2010) Lawton J, Hallowell N, Bradby H
• Research or clinical care? Lay and professional understanding of cancer genetics activities in the UK. (Cancer Research UK, 2005-2007) Hallowell N, Lucassen A & Parker M
• South Asian Patients' experiences of Scottish Diabetes Services: A qualitative study. (Chief Scientist Office., 2003-2004) J. Lawton, N. Hallowell, L.Hanna & M. Douglas
• The implications of BRCA1 and BRCA2 mutation testing for high-risk men and their families. (Cancer Research UK, 2002-2004) Watson M, Foster C, Moynihan C & Hallowell N (CI Institute of Cancer Research , London)
• Psychosocial effects of molecular genetic diagnosis: the case of X-linked learning disability. (Wellcome Trust, 2002-2007) Richards M P M, Hallowell N & Raymond L (CI University of Cambridge)
• The psychosocial implications of prophylactic oophorectomy for premenopausal women with a family history of ovarian cancer. (WellBeing (RCOG), 1997-1999) Hallowell N, Mackay J, Gore M, Richards M P M & Jacobs I (CI University of Cambridge)

SELECTED PUBLICATIONS

• Hallowell N, Cooke S, Crawford G, Parker M, Lucassen A (2009) Distinguishing research from clinical care in cancer genetics: theoretical justifications and practical strategies. Soc Sci Med 68: 2010–2017
• Hallowell N, Cooke S, Crawford G, Parker M, Lucassen A (2009) Health care professionals’ and researchers’ understanding of cancer genetics activities: a qualitative interview study J Med Ethics ;35;113-119
• Lobb EA, Gaff C, Meiser B, Butow P, Osseiran-Moisson R, Hallowell N. (2009) Attendance of men at the familial cancer clinic: What they value from the consultation Genetics in Medicine 11:434-440
• Cooke S, Crawford G, Parker M, Lucassen A, Hallowell N (2008) Recall of participation in cancer genetics research projects. Clin Ethics 3: 180-4
• Hallowell N (2008) Encounters with medical professionals: a crisis of trust or matter of respect? Med Healthcare Philos DOI 10.1007/s11019-008-9156-9
• Hallowell N (2008) Encounters with medical professionals: a crisis of trust or matter of respect? Medicine, Healthcare and Philosophy (In press)
• Hallowell N, Cooke S, Crawford G, Parker M, Lucassen A (2008) Ethics and Research Governance: the views of researchers, healthcare professionals and other stakeholders Clin Ethics 3: 85-90
• Hallowell N, Cooke S, Crawford G, Parker M, Lucassen A (2008) Ethics and Research Governance: the views of researchers, healthcare professionals and other stakeholders Clinical Ethics 3: 85-90
• Lawton J, Ahmad N, Douglas M, Hanna L, Bains H, Hallowell N (2008). “We should change ourselves, but we can’t”: accounts of food and eating practices amongst British Pakistanis and Indians with type 2 diabetes”. Ethnicity and Health, 13: 305-319.
• Ponder M, Statham H, Hallowell N, Moon J, Richards M, Raymond FL (2008) Genetic research on rare familial disorders: consent and the blurred boundaries between clinical service and research J Med Ethics 34: 690-4
• Lawton J, Ahmad N, Peel E, Hallowell N (2007) Contextualising accounts of illness: notions of responsibility and blame in white and South Asian respondents’ accounts of diabetes causation Sociology of Health & Illness 29: 891-906 and Ethnicity, Health and Health Care Understanding Diversity, Tackling Disadvantage Eds Ahmad W & Bradby H
• Hallowell N (2006) Varieties of suffering: living with the risk of ovarian cancer Health Risk & Society. 8: 9-26.
• Hallowell N, Lawton J. (2006) Seeking ethical approval: opening up the lines of communication Clinical Ethics 2: 109-113
• Lawton J, Ahmad N, Hanna L, Douglas M, Hallowell N. (2006) Diabetes service provision: a qualitative study of the experiences and views of Pakistani and Indian patients' with type 2 diabetes. Diabetic Medicine, 23: 1003-1007
• Lawton J, Ahmad N, Hanna L, Douglas M, Hallowell N. (2006). "I can't do any serious exercise": Barriers to physical activity amongst people of Pakistani and Indian origin with type 2 diabetes. Health Education Research. 23: 43-54 Link
• Hallowell N, Ardern-Jones A, Eeles R, Foster C, Lucassen A, Moynihan C & Watson M (2005) Family communication about predictive BRCA1/2 genetic testing: patterns, priorities and problems Clinical Genetics 67:492-502.
• Hallowell N, Ardern-Jones A, Eeles R, Foster C, Lucassen A, Moynihan C & Watson M (2005) Men's decision-making about predictive BRCA1/2 testing: the role of family. Journal of Genetic Counseling 14:207-217
• Lawton J, Ahmad N, Hallowell N, Hanna L, Douglas M. Perceptions and experiences of taking oral hypoglycaemic agents amongst people of Pakistani and Indian origin: qualitative study. BMJ 2005;330 (7502): 1247-1249 Link
• Hallowell N, Foster C, Eeles R, Ardern-Jones A, Watson M. Accommodating risk: women's responses to BRCA1/2 genetic testing following a cancer diagnosis. Social Science & Medicine 2004;59: 553-565
• Hallowell N, Lawton L, Gregory S. Reflections on Research: The Realities of Doing Research in the Social Sciences. Open University Press. 2004;
• Hallowell N, Mackay J, Richards MPM, Gore M, Jacobs I (2004) High-risk premenopausal women's experiences of undergoing prophylactic oophorectomy: a descriptive study. Genetic Testing 8:148-156
• Irving L & Hallowell N (2004) Can there be moral experts? Holm S. & Jonas M. (eds.) Engaging the world: The use of empirical research in the regulation of biotechnology. Amsterdam: IOS Press. pp.28-40
• Mitchell R, 'A little local difficulty' in Hallowell N, Lawton J, Greogry S (eds) (2004) Reflections on research OUP; Maidenhead.
• Hallowell N (2003) Ethics and evidence In Cooper D.N. (ed.) The Encyclopedia of the Human Genome. London: Nature Publishing Group.
• Hallowell N, Foster C, Eeles R, Ardern-Jones A, Murday V, Watson M. Balancing autonomy and responsibility: the ethics of generating and disclosing genetic information. Journal of Medical Ethics 2003;29: 74-79
• Hallowell N & Lawton J (2002) Negotiating present and future selves: decision-making about prophylactic surgery for hereditary ovarian cancer health 6:423-443
• Hallowell N, Foster C, Eeles R, Ardern-Jones A, Murday V, Watson M. Genetic testing for women previously diagnosed with breast/ovarian cancer: examining the impact of BRCA1/ and BRCA2 mutation searching. Genetic Testing 2002;6:79-87
• Hallowell N, Jacobs I, Richards MPM, Mackay J, Gore M. Surveillance or surgery? A description of the factors that influence high-risk premenopausal women's decisions about prophylactic oophorectomy. Journal of Medical Genetics 2001;38: 683-691
• Hallowell N (2000) A qualitative study of the information needs of high risk women undergoing prophylactic oophorectomy. Psycho-Oncology 9:486-495
• Hallowell N (2000) Reconstructing the body or reconstructing the woman? Perceptions of prophylactic mastectomy for hereditary breast cancer risk. In L. Potts (ed.) Ideologies of Breast Cancer: feminist perspectives. London: Macmillan Press/St Martin's Press. pp.153-180.
• Hallowell N (1999) Advising on the management of genetic risk: offering choice or prescribing action? Health, Risk and Society 1:267-280
• Hallowell N (1999) Doing the right thing: genetic risk and responsibility Sociology of Health & Illness 21:597-621 and Sociology of Health & Illness Monograph 5: Sociological Perspectives on the New Genetics. (eds.) J. Gabe & P. Conrad
• Hallowell N & Murton F (1998) The value of written summaries of genetic consultations. Patient Education and Counseling. 35:27-34
• Hallowell N (1998) "You don't want to lose your ovaries because you think 'I might become a man'.": women's perceptions of prophylactic surgery as a cancer risk management option. Psycho-Oncology. 7:263-275
• Hallowell N, Statham H & Murton F (1998) Women's understanding of their risk of developing breast/ovarian cancer before and after genetic counseling Journal of Genetic Counseling. 7:345-364
• Hallowell N & Richards MPM (1997) Understanding Life's Lottery: an evaluation of studies of genetic risk awareness. Journal of Health Psychology. 2:31-43
• Hallowell N, Green JM, Statham H, Murton F & Richards MPM (1997) Recall of numerical risk estimates and counsellees' perceptions of the importance of risk information following genetic counselling for breast and ovarian cancer. Psychology Health and Medicine. 2:149-159
• Hallowell N, Murton F, Statham H, Green JM & Richards MPM (1997) Women's need for information before attending genetic counselling for familial breast or ovarian cancer: a questionnaire, interview and observational study. British Medical Journal. 314:281-283
• Hallowell N, Statham H, Murton F, Green J & Richards MPM (1997) "Talking about chance": the presentation of risk information during genetic counseling for breast and ovarian cancer. Journal of Genetic Counseling. 6:269-286

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